Web Directory

» GeneReviews: Sotos Syndrome
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=sotos

» Genetics Home Reference: Sotos Syndrome
   Includes a description and information on the genetics of this disorder, its inheritance and treatment, with links to other resources.
   http://ghr.nlm.nih.gov/condition/sotos-syndrome

» Sotos Syndrome
   A guide for parents by Bridget Veitch including a summary, history, diagnosis, cause, genetic counselling, physical characteristics and development.
   http://www.childgrowthfoundation.org/pdf_files/Guide%20to%20Sotos%20Syndrome.pdf

» Sotos Syndrome Support Association
   Online community for the education of professionals and families and to exchange ideas, gather research and help families to cope. Quarterly newsletters, reference library, annual meetings, and conferences are available to members and professionals.
   http://www.sotossyndrome.org/

» Sotos Syndrome Support Association of Canada
   Provides educational and emotional support, and current information. English and French.
   http://www.sssac.com