Web Directory

» "China Doll" Syndrome
   Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
   http://moondancer.150m.com/ehlers.html

» American Massage Therapy Association - The Hypermobile Client/Therapist
   Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
   http://www.amtamassage.org/journal/olcott2.html

» Arthritis Insight-EDS Tips for Surgery
   If you or a family member with EDS needs surgery, read this and share it with your doctor.
   http://arthritisinsight.com/medical/surgery/eds.html

» Coalition for Heritable Disorders of Connective Tissue
   Research organization for genetic connective tissue disorders.
   http://www.chdct.org

» Department of Pathology
   Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
   http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlossyndrome/

» Diagnose-Me: Treatments: Prolotherapy
   Some EDS patients have obtained excellent results with prolotherapy treatments.
   http://www.diagnose-me.com/treat/T85233.html

» EDS Living - a Journal
   Learn what it's like to live with EDS for this woman and her children by following her online journal.
   http://edsliving.livejournal.com/

» EDS Today
   The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
   http://www.edstoday.org/

» Ehlers Danlos Foundation of New Zealand
   Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
   http://www.edfnz.org.nz

» Ehlers-Danlos Hope
   A Syrian patient gives a personal plea for better medical support and research.
   http://ehler.8m.com

» Ehlers-Danlos National Foundation - Michiana Branch
   Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
   http://smackdabdesign.com/mednf/

» Ehlers-Danlos Syndrome Information
   A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
   http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

» Ehlers-Danlos Syndrome Medical Information
   Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
   http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm

» Ehlers-Danlos Syndrome Support Group
   This site offers information for patients and doctors, plus links.
   http://www.ehlers-danlos.org

» Electronic Textbook of Hand Surgery
   Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
   http://www.eatonhand.com

» Hypermobility & Fibromyalgia Support Site
   Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
   http://anaiis.tripod.com/hmedfm/index.html

» Hypermobility Portal
   Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
   http://hypermobility.objectis.net/

» NORD: Ehlers-Danlos Syndrome
   Information about EDS from the National Organization for Rare Disorders.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome

» Oral Manifestations of Ehlers-Danlos Syndrome
   EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
   http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html

» Sandy Simmons' Connective Tissue Disorder Site
   Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
   http://www.ctds.info/

» The Hypermobility Syndrome Association
   HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
   http://www.hypermobility.org/

» The Swedish Ehlers-Danlos Syndrome National Association
   The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
   http://www.ehlers-danlos.se/indexEng.html

» eMedicine - Ehlers-Danlos Syndrome
   Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
   http://www.emedicine.com/derm/topic696.htm