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Adrenoleukodystrophy (5)

See Also:
Sites:

http://www.aldfoundation.org/
» Adrenoleukodystrophy (ALD) Foundation Open in a new browser window
   A non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease.
   http://www.aldfoundation.org/
http://serendip.brynmawr.edu/bb/neuro/neuro00/web1/Arnaudo.html
» Human and Scientific Story of Adrenoleukodystrophy Open in a new browser window
   Description, discussion of treatments, and links.
   http://serendip.brynmawr.edu/bb/neuro/neuro00/web1/Arnaudo.html
http://www.mysonjoe.org.uk
» My Son Joe Open in a new browser window
   Dedicated to the author's little boy Joseph, who sadly passed away in August 2003 from Adrenoleukodystrophy, ALD.
   http://www.mysonjoe.org.uk
http://www.tellingstories.nhs.uk/transcript.asp?id=59
» The Loss of a Much Loved Son: Veronica’s Story Open in a new browser window
   Veronica describes dealing with the diagnosis of adrenoleukodystrophy and considers that the healthcare professionals involved needed more training in communication skills.
   http://www.tellingstories.nhs.uk/transcript.asp?id=59
http://www.x-ald.nl/
» X-linked Adrenoleukodystrophy Mutations Open in a new browser window
   This database has been initiated to collect data on mutations found in the gene (ABCD1) responsible for X-linked adrenoleukodystrophy.
   http://www.x-ald.nl/

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Last Updated: 2009-05-20 11:53:13





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