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Adrenoleukodystrophy (5) See Also:
Sites:
» Adrenoleukodystrophy (ALD) Foundation
A non-profit organization created to educate about ALD by providing educational materials and links to information associated with the disease. http://www.aldfoundation.org/ » Human and Scientific Story of Adrenoleukodystrophy
Description, discussion of treatments, and links. http://serendip.brynmawr.edu/bb/neuro/neuro00/web1/Arnaudo.html » My Son Joe
Dedicated to the author's little boy Joseph, who sadly passed away in August 2003 from Adrenoleukodystrophy, ALD. http://www.mysonjoe.org.uk » The Loss of a Much Loved Son: Veronica’s Story
Veronica describes dealing with the diagnosis of adrenoleukodystrophy and considers that the healthcare professionals involved needed more training in communication skills. http://www.tellingstories.nhs.uk/transcript.asp?id=59 » X-linked Adrenoleukodystrophy Mutations
This database has been initiated to collect data on mutations found in the gene (ABCD1) responsible for X-linked adrenoleukodystrophy. http://www.x-ald.nl/ This category needs an editor
Last Updated: 2009-05-20 11:53:13
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