Web Directory

» Everything Sickle Cell
   A site intended to provide general educational information about SCD, including causes, clinical trials, coping skills, and complications.
   http://www.everythingsicklecell.com

» Living with Sickle Cell Disease
   Mike has sickle cell disease and talks about his varying experiences with the NHS and how he now helps train other sufferers to manage their own illness.
   http://www.tellingstories.nhs.uk/transcript.asp?id=34

» MedlinePlus: Sickle Cell Anemia
   Factsheet on this disease, its causes, symptoms, tests, treatment, outlook and possible complications.
   http://www.nlm.nih.gov/medlineplus/ency/article/000527.htm

» NHS Choices: Sickle Cell Anaemia
   Provides information on this inherited blood disorder. Includes a short video and details of symptoms, causes, diagnosis, treatment, complications and self help.
   http://www.nhs.uk/conditions/Sickle-cell-anaemia/

» Natural History of Sickle Cell Disease in India
   Lists and describes the contribution of Dr. Bimal Chandra Kar. Patient resources, papers and publications.
   http://bimal_chandra_kar.tripod.com/SicklecellinIndia/

» Sickle Cell
   A guide for GPs, nurses and other health professionals. Some of the topics covered include basic facts, symptoms, how to recognise a crisis, diagnosis and management.
   http://www.sicklecellsociety.org/pdf/SC4.pdf

» Sickle Cell Anaemia
   Information on this disease from the Rare Disease Database of the Swedish National Board of Health and Welfare.
   http://www.socialstyrelsen.se/english/rarediseases/sicklecellanaemia

» Sickle Cell Crisis
   Information from eMedicine on the causes, symptoms, and treatment.
   http://www.emedicinehealth.com/articles/6504-1.asp

» Sickle Cell Disease Association of America
   Education, advocacy and other initiatives which promote awareness and support for sickle cell programs and patients.
   http://www.sicklecelldisease.org/

» Sickle Cell Disease Forum
   A place where anyone dealing with sickle cell disease can submit articles, read articles, and /or respond to articles submitted by others
   http://sites.google.com/site/sicklecellforum/

» Sickle Cell Disease Review
   Promotes and disseminates research into the scientific, clinical and social aspects of this disorder. Literature review, bibliography, and general information on the disease.
   http://scdreview.tripod.com/

» Sickle Cell Disease: Practical Tips for Preventing a Sickle Cell Crisis
   Advice from FamilyDoctor.org.
   http://familydoctor.org/550.xml

» Sickle Cell Information Center
   Current information for health care providers, patients, the public, teachers and others with online treatment guideline books, a tutorial, multiple links to other sickle cell sites and a directory of clinics in the US.
   http://www.scinfo.org/

» Sickle Cell Society
   A UK-based charity which provides care and information. Research findings, pain management techniques, and teaching resources.
   http://www.sicklecellsociety.org/

» Sickle-Cell Anemia: Knowledge Is the Best Defense
   An article about sickle-cell anemia with an explanation, the symptoms, treatment, prevention and how it is passed on. From Watch Tower Bible and Tract Society of Pennsylvania.
   http://www.watchtower.org/e/19961008/article_01.htm

» Smiles for Miles
   Factsheet on sickle cell anemia created by friends of Miles, a high school sophomore with the disease.
   http://www.smilezfomilez.webs.com

» The American Sickle Cell Anemia Association
   A non-profit organisation based in Cleveland Ohio whose objectives are to raise awareness of the condition. Features educational material, FAQs, support groups and a message board.
   http://www.ascaa.org/

» The Sickle Cell Foundation of Alberta
   Educates the public about sickle cell disease and provides support for carriers of the trait and their families.
   http://www.sicklecellfoundationofalberta.org

» Tony’s Story: Living with Sickle Cell Disease
   A personal experience of this autosomal recessive condition.
   http://www.tellingstories.nhs.uk/transcript.asp?id=3