Web Directory

» About.com
   Information about congenital heart defects, and February 14th being recognized as a day for hearts.
   http://heartdisease.about.com/blchd.htm

» American Heart Association
   The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.
   http://www.americanheart.org/presenter.jhtml?identifier=1477

» CHD Awareness Day
   The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.
   http://www.tchin.org/aware.htm

» CHD Support Graphics
   A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.
   http://heartdisease.about.com/chdgraphics.htm

» Congenital Heart Diseases Their Study and Treatment
   A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)
   http://www.redtail.net/owc

» CongenitalHeartDefects.com
   Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.
   http://www.congenitalheartdefects.com

» Coping with Congenital Heart Disease in Your Baby
   Article with some useful information, published by The American Academy of Family Physicians.
   http://www.aafp.org/afp/990401ap/990401d.html

» Fontan Operation
   Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.
   http://www.fontanoperation.com/fontan.htm

» Grown Up Congenital Heart Patients Association (GUCH)
   Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.
   http://www.guch.org.uk

» HLHS Information
   Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
   http://hlhsinfo.homestead.com/

» Heart Defects: Truncus Arteriosus Type 1
   Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
   http://www.childrenheartinstitute.org/educate/defects/truncus1.htm

» Heart Disease Online
   A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
   http://www.heartdiseaseonline.com

» Hearts Of Hope
   Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
   http://www.heartsofhope.iinet.net.au/

» International Society for Adult Congenital Cardiac Disease
   The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
   http://www.isaccd.org/

» MedicineNet: Congenital Heart Disease
   Detailed look at the causes, symptoms, types, and treatments.
   http://www.medicinenet.com/congenital_heart_disease/article.htm

» Merck Manual: Congenital Cardiovascular Anomalies
   Overview of congenital anomalies of the heart and blood vessels with information on a number of different birth defects.
   http://www.merck.com/mmpe/sec19/ch287/ch287a.html

» Miami Children's Hospital
   Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
   http://www.pediatricheartsurgery.com

» Minimal Invasive Congenital Heart Surgery
   An article about treating birth defects of the heart using this techniques.
   http://heartdisease.about.com/library/weekly/aa011198.htm

» Our Little Braveheart
   Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
   http://members.tripod.com/stephandjake-ivil/braveheart/

» Palliative Operations
   The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
   http://heartdisease.about.com/library/weekly/aa112397.htm

» Persistent Pulmonary Hypertension of the Newborn
   A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.
   http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm

» Prenatal Diagnosis of Heart Problems
   UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.
   http://www.fetalcardiology.co.uk

» Resources from California State University
   Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
   http://www.csun.edu/~hcmth011/heart/

» The Charlie Ramsey Research Fund
   Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.
   http://crrf.org.uk

» Ventricular Septal Defect
   VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.
   http://heartdisease.about.com/library/weekly/aa020898.htm