Web Directory

» Batten Disease
   Wikipedia article explains what it is, symptoms, history, inheritance factors, diagnosis, and treatment. Includes links to additional information.
   http://en.wikipedia.org/wiki/Batten_disease

» Batten Disease Information Page
   Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/batten/batten.htm

» Batten Disease Support and Research Association
   BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
   http://www.bdsra.org/

» NCL Resource: A Gateway For Batten Disease
   Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis (NCLs). Includes what it is, genetics, research, treatment, and family support.
   http://www.ucl.ac.uk/ncl/

» The Luke and Rachel Batten Foundation
   Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
   http://lrbf.org