Web Directory

» Caring for a Child with Prader-Willi Syndrome
   Gail describes her son's treatment by the NHS.
   http://www.tellingstories.nhs.uk/transcript.asp?id=52

» Foundation for Prader Willi Research Canada
   Charitable organization dedicated to eliminating Prader-Willi Syndrome through the advancement of research. Includes information, details of research projects and how members of the public can get involved.
   http://www.fpwr.ca

» GeneReviews: Prader-Willi Syndrome
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=pws

» Gretton Homes
   Information about the organization that offers residential care in the UK for people with Prader-Willi syndrome.
   http://www.grettonhomes.co.uk/

» Latham Centers
   A residential facility, located on Cape Cod, USA, for the treatment of adults and children with Prader-Willi Syndrome. Includes details about diet, medical news, the programs, and consulting services.
   http://www.lathamcenters.org/

» NICHD: Prader-Willi Syndrome
   Provides information on this condition, how it affects newborns and older children in different ways, and how it can be managed.
   http://www.nichd.nih.gov/health/topics/Prader_Willi_Syndrome.cfm

» PWS Notes
   Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
   http://www.pwsnotes.org/

» Patient UK: Prader-Willi Syndrome
   Provides information for medical professionals on this complex genetic disorder.
   http://www.patient.co.uk/doctor/Prader-Willi-Syndrome.htm

» Prader-Willi Alliance of New York
   Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
   http://www.prader-willi.org

» Prader-Willi Syndrome
   Information about Prader-Willi syndrome from the Rare Disease Database of the Swedish National Board of Health and Welfare.
   http://www.socialstyrelsen.se/english/rarediseases/prader-willisyndrome

» Prader-Willi Syndrome Association (USA)
   Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult),
   http://www.pwsausa.org/

» Prader-Willi Syndrome: My Son’s Story
   Paula describes the birth of her son, the diagnosis of this condition at six weeks, the help she had from the consultant but the lack of support from other healthcare professionals.
   http://www.tellingstories.nhs.uk/transcript.asp?id=23

» The Foundation for Prader-Willi Research
   A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
   http://www.fpwr.org/

» The New Jersey Chapter of the Prader-Willi Syndrome Association
   Includes news, important dates, fund raising, maps and links.
   http://www.pwsausa.org/nj/

» The Prader-Willi Syndrome Association (UK)
   Charitable organization providing support to people with PWS, their families and carers, and the professionals who work with them. Includes information and resources.
   http://pwsa.co.uk/

» University of Michigan Health System: Prader-Willi Syndrome
   Information about this syndrome in children and links to relevant articles and organizations providing advocacy and support.
   http://www.med.umich.edu/yourchild/topics/praders.htm