Web Directory

» DermNet NZ: Proteus Syndrome
   Factsheet with an overview, signs, symptoms and management.
   http://www.dermnetnz.org/systemic/proteus.html

» NORD: Proteus Syndrome
   Offers synonyms, a general discussion and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Proteus%20Syndrome

» Proteus Syndrome Foundation
   Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
   http://www.proteus-syndrome.org/

» Proteus Syndrome Foundation UK
   Charitable organisation that supports and educates families and professionals about this condition and raises money for research.
   http://www.proteus-syndrome.org.uk/

» Teens First for Health: Proteus Syndrome
   Factsheet on this extremely rare congenital disorder, its causes, features, diagnosis, treatment and when to seek medical help.
   http://www.childrenfirst.nhs.uk/teens/health/conditions/p/proteus_syndrome.html

» The CaF Directory
   A definition of Proteus syndrome, its inheritance pattern, pre-natal diagnosis and a support group.
   http://www.cafamily.org.uk/Direct/p50.html

» Woman's 11-stone legs may be lost
   The BBC reports on a Lancashire woman's campaign to raise awareness of a condition which has left her with 11-stone legs.
   http://news.bbc.co.uk/2/hi/uk_news/england/lancashire/6621331.stm