Web Directory

» Angelica
   A mother's story of how she diagnosed Shwachman syndrome before a team of doctors could.
   http://www.chariot.net.au/~dna/angelica.html

» Curran Family Website
   A family with two children affected by Shwachman-Diamond syndrome. Includes information about the condition and on support groups.
   http://www.shwachman.50megs.com

» GeneReviews: Shwachman-Diamond Syndrome
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=sds

» Katie's Journey
   Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
   http://www.katiesjourney.50megs.com

» NORD: Shwachman Syndrome
   Offers a general discussion, the synonyms and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome

» Shwachman Syndrome
   Genetic information from the Swedish Information Centre for Rare Diseases.
   http://www.socialstyrelsen.se/english/rarediseases/shwachmansyndrome

» Shwachman-Diamond America
   Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
   http://shwachmandiamondamerica.org

» Shwachman-Diamond Syndrome Family/Friends
   An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
   http://groups.yahoo.com/group/shwachmansyndrome/

» Shwachman-Diamond Syndrome International
   Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
   http://www.shwachman-diamond.org/

» The CaF Directory
   A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
   http://www.cafamily.org.uk/Direct/s24.html