Web Directory

» A Parent's Account of Trichoththiodystrophy
   A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
   http://www.vp-it.com.au/sammyjoe/

» About Andrea’s Disease
   Personal history of a girl in France. [English/French]
   http://monsite.wanadoo.fr/andrea2610/

» Atlas of Genetics and Cytogenetics in Oncology and Haematology
   Description and links.
   http://www.infobiogen.fr/services/chromcancer/Kprones/TrichothioID10042.html

» Foundation for Ichthyosis and Related Skin Types
   Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
   http://www.scalyskin.org/content.cfm?ContentID=105&ColumnID=14

» Hair Shaft Defects - Trichothiodystrophy
   Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
   http://www.keratin.com/ag/ag013.shtml

» Jeans for Genes Day
   Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
   http://www.jeansforgenes.com/

» National Library of Medicine
   Trichothiodystrophy, the synonyms, a summary and a list of the major features.
   http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=omim&dopt=Detailed&tmpl=dispomimTemplate&list_uids=601675

» Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani
   A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers.
   http://www.orpha.net/data/patho/GB/uk-trichothiodystrophy.pdf

» Yahoo! Groups : Trichothiodystrophy
   Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.
   http://health.groups.yahoo.com/group/Trichothiodystrophy/

» Yahoo! Groups : Trichothiodystrophy Family Contact
   For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.
   http://health.groups.yahoo.com/group/TTD-support/