Web Directory

» Family Village
   Links to chat rooms, web sites and information about Von Hippel Lindau's disease.
   http://www.familyvillage.wisc.edu/lib_vonh.htm

» Radiology: Von Hippel Lindau Disease
   Genetic, clinical and imaging features from the NIH.
   http://www.cc.nih.gov/ccc/papers/vonhip/toc.html

» Rob’s Story: Living with Von Hippel Lindau
   Rob describes how this autosomal dominant condition affects his life.
   http://www.tellingstories.nhs.uk/transcript.asp?id=10

» Von Hippel-Lindau Disease
   Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm

» Von Hippel-Lindau Family Alliance
   Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]
   http://www.vhl.org/