Web Directory

» 4P- Support Group, Inc.
   USA-based non-profit association of families of children with 4p-, offering phone support, newsletters, national biannual gathering and regional meetings.
   http://www.4p-supportgroup.org/

» AWHSSG Home
   Australian Wolf-Hirschhorn Syndrome Support Group, with pictures of the webmaster's daughter Bethany Louise, and reports from the biennial conference held in odd-numbered years.
   http://home.vicnet.net.au/~awhssg/

» Arran Benjamin Willock
   Includes very detailed month-by-month status reports of a WHS boy born April 2000.
   http://www.willock.net/arran/

» GeneReviews: Wolf-Hirschhorn Syndrome
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=whs

» Online Mendelian Inheritance in Man
   Features a list of reported case studies and symptoms, genetic information, and important references.
   http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=OMIM&dopt=Detailed&tmpl=dispomimTemplate&list_uids=194190

» Orphanet: Wolf-Hirschhorn Syndrome
   Provides information on this genetic disorder including the diagnostic criteria, differential diagnosis, clinical description, management and etiology.
   http://www.orpha.net/data/patho/GB/uk-WHS.pdf

» WHS 4p - Support Group UK
   Includes a beginners' guide to the underlying genetic cause. Managed by Mrs C. V. Hilder, mother of a WHS son.
   http://www.whs.webk.co.uk/

» Wolf-Hirschhorn Syndrome
   German WHS Support Group, with information for parents and medical professionals. Includes a very list of symptoms.
   http://www.wolf-hirschhorn.de/

» eMedicine - Wolf-Hirschhorn Syndrome
   Detailed information on differential diagnosis, genetics, likely clinical history, and symptoms.
   http://www.emedicine.com/ped/topic2446.htm