Web Directory

» Freeman-Sheldon Parent Support Group
   Includes a members-only area with a bulletin board and pictures of afflicted children.
   http://www.fspsg.org/

» Freeman-Sheldon Syndrome - Wikipedia
   Detailed description of incidence, nosology, inheritance, and condition management.
   http://en.wikipedia.org/wiki/Freeman-Sheldon_syndrome

» Geneva Foundation for Medical Education and Research
   Several pictures of children with typical FSS characteristics.
   http://www.gfmer.ch/genetic_diseases_v2/gendis_detail_list.php?cat3=358

» National Craniofacial Association
   Summarizes the child's likely needs, and has links to other resources.
   http://www.faces-cranio.org/Disord/Freeman.htm

» Online Mendelian Inheritance in Man
   Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.
   http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=193700