Web Directory

» Carnitine Palmitoyltransferase Deficiency
   Newsletter for health care professionals and patients interested in CPT deficiency, a mitochondrial disorder of fat metabolism that causes muscle breakdown.
   http://www.spiralnotebook.org

» Center for Inherited Disorders of Energy Metabolism (CIDEM)
   A group of inter-disciplinary, clinical diagnostic laboratories which focus on disorders of mitochondrial function at Case Western Reserve University.
   http://www.case.edu/med/CIDEM/cidem.htm

» Foundation for a Cure for Mitochondrial Disease, Inc.
   Fundraising for a cure for mitochondrial disease such as Melas, Merf, Narp, and Leighs Syndromes.
   http://mitocure.org

» Mitochondrial Disease in Children
   All seven of Kathleen's children have mitochondrial encephalomyopathy, and two of them have hearing loss as a result.
   http://www.kathleensworld.com/mitochon.html

» Mitochondrial Disorders Foundation of America
   Support group for mitochondrial disorders.
   http://www.familyvillage.wisc.edu/lib_mito.htm

» Mitochondrial Myopathies
   An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/mitochondrial_myopathy/mitochondrial_myopathy.htm

» United Mitochondrial Disease Foundation
   To promote research for the cure and treatment, and to provide support to families. The UMDF offers a library, patient registry, support information, conferences, research and grant updates, and a special section for physicians.
   http://www.umdf.org/