Web Directory

» Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program
   Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
   http://www.cincinnatichildrens.org/Programs_Services/229/index.asp

» Karen’s Story: Family Life with Tuberous Sclerosis
   A mother’s account of some of the challenges associated with this autosomal dominant condition.
   http://www.tellingstories.nhs.uk/transcript.asp?id=5

» Kolten's Tuberous Sclerosis Page
   Describes his seizures and surgery.
   http://www.kolten.homestead.com/Kolten.html

» Matthew's Site for Tuberous Sclerosis Awareness
   Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
   http://www.angelfire.com/la3/tsc/

» MedlinePlus: Tuberous Sclerosis
   A list of synonyms, a summary and major features.
   http://www.nlm.nih.gov/medlineplus/tuberoussclerosis.html

» NHS Choices: Tuberous Sclerosis
   Provides information on this rare genetic condition. Includes details of symptoms, causes, diagnosis and treatment.
   http://www.nhs.uk/conditions/Tuberous-sclerosis/

» NHS: Telling Stories: Mark's Story
   Mark describes the complexities of his childrens' condition, the genetic information he has received and how family life is affected.
   http://www.tellingstories.nhs.uk/transcript.asp?id=11

» NORD: Tuberous Sclerosis
   Offers alternative names, a general discussion and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis

» Pediatric Oncall- Tuberous Sclerosis
   Offers commonly asked questions about this disease.
   http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp

» Tuberous Sclerosis
   A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/tuberous_sclerosis/tuberous_sclerosis.htm

» Tuberous Sclerosis - Lisa's Site
   An incurable genetic condition that causes tumors to grow in various places in the body.
   http://www.title14.com/ts/

» Tuberous Sclerosis Alliance
   US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
   http://www.tsalliance.org/

» Tuberous Sclerosis Association
   UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
   http://www.tuberous-sclerosis.org/

» Tuberous Sclerosis Fact Sheet
   Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
   http://www.ninds.nih.gov/disorders/tuberous_sclerosis/detail_tuberous_sclerosis.htm