Web Directory

» Charcot-Marie-Tooth Association
   Includes information about the organization, its goals, research, news and further resources. Also offers suggestions on ways to help.
   http://www.charcot-marie-tooth.org/

» Charcot-Marie-Tooth Disorder
   Information page compiled by National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/charcot_marie_tooth/charcot_marie_tooth.htm

» Charcot-Marie-Tooth Syndrome
   Information on this disease: peroneal muscular atrophy or CMT.
   http://www.kaikracht.de/cmt/

» Christine’s story: Perspectives on Charcot-Marie-Tooth Disease
   An account from a mother and midwife on this autosomal dominant condition.
   http://www.tellingstories.nhs.uk/transcript.asp?id=1

» Dejerine-Sottas
   Provides news, links, and a message board about Dejerine-Sottas syndrome, also known as CMT Type 3.
   http://www.dejerine-sottas.com

» General Practice Notebook - Charcot-Marie-Tooth disease
   Clinically-oriented information.
   http://www.gpnotebook.co.uk/simplepage.cfm?ID=-1241120765

» Hereditary Neuropathy Foundation (HNF)
   Raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot Marie Tooth Disease (CMT Syndrome).
   http://www.hnf-cure.org/

» Living with Charcot-Marie Tooth: A Husband’s Tale
   Alan describes how this progressive condition has affected his family and their involvement with health care professionals.
   http://www.tellingstories.nhs.uk/transcript.asp?id=43

» Living with Charcot-Marie Tooth: A Wife’s Tale
   Eleanor describes her gradual realisation that she had an inherited disorder and how it has since impacted on her family.
   http://www.tellingstories.nhs.uk/transcript.asp?id=44

» Living with a Late Onset, Progressive Condition: Kath’s Story
   Kath describes how she and her husband cope with his Charcot-Marie-Tooth syndrome.
   http://www.tellingstories.nhs.uk/transcript.asp?id=56

» Living with a Late Onset, Progressive Condition: Phillip’s Story
   A husband’s perspective on living with his autosomal dominant condition, Charcot-Marie-Tooth syndrome.
   http://www.tellingstories.nhs.uk/transcript.asp?id=57

» MDA Publications
   Facts about Charcot-Marie-Tooth disease.
   http://www.mda.org/publications/fa-cmt.html

» NHS Choices: Charcot-Marie-Tooth Disease
   Provides information on this condition that causes damage to the peripheral nerves. Includes a short video and details of symptoms, causes, diagnosis, treatment, complications and prevention.
   http://www.nhs.uk/conditions/Charcot-Marie-Tooth-disease/

» Patient UK: Charcot-Marie-Tooth Syndrome
   Factsheet on this inherited sensorineural peripheral polyneuropathy, including its pathogenesis, epidemiology, presentation, differential diagnosis, investigation, management, complications and prognosis.
   http://www.patient.co.uk/doctor/Charcot-Marie-Tooth-Syndrome.htm

» Telling Stories: Penny's Story
   A grandmother’s story of living with the autosomal dominant condition, Charcot-Marie-Tooth.
   http://www.tellingstories.nhs.uk/transcript.asp?id=6