Web Directory

» British Columbia Neurofibromatosis Foundation
   BCNF is a membership driven organization, which empowers individuals with NF and their families to reach their full potential by providing support, education and research funding.
   http://www.bcnf.bc.ca

» NF2Crew
   On-line discussion group for people with neurofibromatosis 2.
   http://www.nf2crew.com

» NHS Choices: Neurofibromatosis
   Provides information on this genetic disorder that affects the nervous system and the skin. Includes details of symptoms, causes, diagnosis, treatment and complications.
   http://www.nhs.uk/conditions/Neurofibromatosis/

» Neurofibromatosis
   Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm

» Neurofibromatosis Association of Australia Inc.
   Support group for people with neurofibromatosis. Has a medical and scientific advisory board and close affiliation with similar NF groups overseas.
   http://www.nfaa.org.au/

» Neurofibromatosis Cafe
   NF patient, Reggie Bibbs, presents the personal aspects of living with neurofibromatosis including news, events, blog, live chat, photographs and videos.
   http://www.reggiebibbs.com

» Neurofibromatosis Clinic at M. D. Anderson Cancer Center
   Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
   http://www.mdanderson.org/departments/neurofibrom/

» Neurofibromatosis Clinics Association, Inc.
   A non-profit organization for people with NF and their families.
   http://www.nfpittsburgh.org/

» Neurofibromatosis(Von Recklinghausen's disease)
   A review of the most important aspects on physical examination, classification and treatment, for medical students.
   http://www.medstudents.com.br/neuro/neuro7.htm

» Neurofibromatosis, Inc.
   Support and information for those with Neurofibromatosis.
   http://www.nfinc.org/

» Patient UK: Neurofibromatosis
   Factsheet on this condition, including its epidemiology, presentation, features, problems, investigations, differential management, prognosis and prevention.
   http://www.patient.co.uk/doctor/Neurofibromatosis.htm

» Race for NF Research
   Dedicated to promoting awareness of Neurofibromatosis. It also contains the latest research as well as fund raising programs (Marathons, racing, walking, etc) that raise money towards NF research.
   http://www.racefornfresearch.com

» Texas Neurofibromatosis Foundation
   Includes a list of events, fundraisers and outreach programs, as well as background information on the disease, and links to related resources.
   http://www.texasnf.org

» The Children's Tumor Foundation
   Dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
   http://www.ctf.org

» Understanding Neurofibromatosis
   This information will explain what NF is, what causes NF, what your family will need to do about it, and who can help you. From the University of Chicago Comer Children's Hospital.
   http://www.uchospitals.edu/peds-neurology/neurofibromatosis/