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Rett Syndrome (16) Categories:
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» International Rett Syndrome Association (IREA)
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families. http://www.rettsyndrome.org/ » NINDS Rett Syndrome Information Page
Information on treatment and prognosis. http://www.ninds.nih.gov/disorders/rett/rett.htm » Rett Angels
Forum and online support group sharing personal stories and information. http://www.rettangels.org » Rett Syndrome Association UK
National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar. http://www.rettsyndrome.org.uk/ » Rett Syndrome Fact Sheet
An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS). http://www.ninds.nih.gov/disorders/rett/detail_rett.htm » The Sarah Varon Foundation for Rett Research
A family dedicated to finding a cure. Find announcements, photos, and an overview of the disease. http://www.sarahvaronfoundation.org/ This category needs an editor
Last Updated: 2007-01-02 16:35:11
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