Web Directory

» Ara Parseghian Medical Research Foundation
   About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease.
   http://www.parseghian.org/

» Caring for Simon
   A day in the life of a parent caring for an eight year old child with the autosomal recessive condition Niemann-Pick.
   http://www.tellingstories.nhs.uk/transcript.asp?id=21

» GeneReviews: Niemann-Pick Disease Type C
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=npc

» International Center for Types A and B Niemann-Pick Disease
   Provides information on the prevention and treatment of this disorder for patients, physicians and scientists.
   http://www.mssm.edu/niemann-pick/

» Jacob's Reach
   Niemann-Pick Disease Type C public awareness campaign in honor of Jacob Quinn DeMeis. Includes information on the disease and on Jacob's short life.
   http://www.jacob-quinn.com/

» National Niemann-Pick Disease Foundation
   Provides in depth education and support for patients and families. Also information about the foundation itself.
   http://www.nnpdf.org/

» Niemann-Pick Disease
   Information sheet on this disease including what it is, treatment, prognosis and research being done.
   http://www.ninds.nih.gov/disorders/niemann/niemann.htm