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Mucopolysaccharidoses (13)

Categories:

See Also:
This category in other languages:

French, Japanese

Sites:

http://www.familyvillage.wisc.edu/lib_muco.htm
» Family Village Library: Mucopolysaccharidosis Open in a new browser window
   Lists types, places to chat, and websites.
   http://www.familyvillage.wisc.edu/lib_muco.htm
http://www.maroteaux-lamy.com
» Maroteaux-Lamy.com Open in a new browser window
   Aims to improve the awareness, diagnosis, and treatment of maroteaux-lamy syndrome, and to provide resources that can help improve the lives of those affected by this disease. Sections for patients and caregivers and for the healthcare professional.
   http://www.maroteaux-lamy.com
http://health.groups.yahoo.com/group/Morquio/
» Morquio Open in a new browser window
   Yahoo message group that offers support to those afflicted with mucopolysaccharide accumulation.
   http://health.groups.yahoo.com/group/Morquio/
http://personal.ecu.edu/brownmi/muco.htm
» Mucopolysaccharide Disorders Open in a new browser window
   Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
   http://personal.ecu.edu/brownmi/muco.htm
http://www.ninds.nih.gov/disorders/mucopolysaccharidoses/mucopolysaccharidoses.htm
» NINDS Mucopolysaccharidoses Information Page Open in a new browser window
   Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/mucopolysaccharidoses/mucopolysaccharidoses.htm
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mucopolysaccharidoses
» NORD: Mucopolysaccharidoses Open in a new browser window
   Offers a list of synonyms, a general discussion and further resources.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Mucopolysaccharidoses
http://www.mpssociety.org/
» National MPS Society Open in a new browser window
   Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
   http://www.mpssociety.org/
http://www.mpssociety.ca/
» The Canadian Society for Mucopolysaccharide & Related Diseases Open in a new browser window
   Founded to provide information and support to affected individuals and their families.
   http://www.mpssociety.ca/
http://www.mpscup.ca/
» The MPS Cup Open in a new browser window
   A star studded fantasy hockey game and auction, allowing participants to play alongside some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
   http://www.mpscup.ca/
http://www.mpssociety.co.uk/
» The Society for Mucopolysaccharide Diseases Open in a new browser window
   A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
   http://www.mpssociety.co.uk/

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Last Updated: 2010-07-15 20:43:44





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