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Pierre Robin Syndrome (4) See Also:
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Sites:
» Chase's Story
Personal account of one child's experience of this condition. Includes photographs. http://www.pierrerobin.com » Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes. http://www.cafamily.org.uk/Direct/p24.html » NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report] http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome » Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. http://www.pierrerobin.org This category needs an editor
Last Updated: 2010-06-14 20:06:36
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