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Pierre Robin Syndrome (4)

See Also:
This category in other languages:

French

Sites:

http://www.pierrerobin.com
» Chase's Story Open in a new browser window
   Personal account of one child's experience of this condition. Includes photographs.
   http://www.pierrerobin.com
http://www.cafamily.org.uk/Direct/p24.html
» Contact a Family: Pierre Robin Syndrome Open in a new browser window
   Main features of the condition and possible causes.
   http://www.cafamily.org.uk/Direct/p24.html
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
» NORD - Pierre Robin Syndrome Open in a new browser window
   Sample report, plus links to organisations. [Fee required for full report]
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome
http://www.pierrerobin.org
» Pierre Robin Network Open in a new browser window
   Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
   http://www.pierrerobin.org

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Last Updated: 2010-06-14 20:06:36





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