Web Directory

» Genetic Interest Group
   Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
   http://www.gig.org.uk

» Joubert Syndrome in the UK
   Support group for families of children affected with Joubert Syndrome.
   http://www.jsuk.btik.com/

» PiXiE
   Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
   http://www.pxe.org.uk/

» The Alkaptonuria Society
   Information about this genetic metabolic disorder for patients and professionals. Includes FAQ and a registration page for sufferers.
   http://www.alkaptonuria.info/

» The Williams Syndrome Foundation
   Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
   http://www.williams-syndrome.org.uk/