Web Directory

» Facial Neuralgia Resources: Parry-Romberg Syndrome
   Provides a description of this disease and its symptoms.
   http://facial-neuralgia.org/conditions/romberg.html

» Fighting Parry Romberg Syndrome
   Provides a podcast and downloadable video describing how the mother of an affected teenager is working to provide support for other victims of this rare disorder.
   http://www.fightsma.org/blog/index.php?tag=parry-romberg-syndrome

» National Craniofacial Association: Parry Romberg Syndrome
   Provides a description of this condition, also known as progressive hemifacial atrophy, its treatment and prognosis.
   http://www.faces-cranio.org/Disord/parryromberg.htm

» Parry Romberg Foundation
   Non-profit organization whose mission is to develop and provide resources for research, advocacy, education, and support for persons with Parry Romberg Syndrome, their families, doctors and communities.
   http://www.parryrombergfoundation.org/

» Parry-Romberg Syndrome
   Report on a global study of 205 patients.
   http://www.annstone.co.uk/parry/stone%20-%20parry%20romberg.pdf

» Parry-Romberg Syndrome Information Page
   Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Definition, treatment, prognosis, research and details of relevant organizations.
   http://www.ninds.nih.gov/disorders/parry_romberg/parry_romberg.htm

» Parry-Romberg Syndrome Resource
   Non-profit organization dedicated to providing awareness of this condition. Includes information on the symptoms, treatments, restorative procedures and research studies, and a number of case studies.
   http://www.prsresource.com/

» Progressive Hemifacial Atrophy
   A US Department of Health and Human Service project providing information and resources on this condition.
   http://rarediseases.info.nih.gov/GARD/Disease.aspx?PageID=4&diseaseID=7338

» Wikipedia: Parry–Romberg Syndrome
   Encyclopedia article on this rare, incurable craniofacial disorder which is characterized by the slow atrophy of the subcutaneous muscle usually on just one side of the face.
   http://en.wikipedia.org/wiki/Parry-Romberg_syndrome