Web Directory

» About Face
   Article by Sandy Keefe, MSN, RN on the transformation to children's lives that can occur following reconstructive surgery to correct facial deformities.
   http://craniofacialfoundation.org/downloads/advance_june06.pdf

» AboutFace
   Organization aiming to connect individuals with similar experiences of living with facial difference. Includes information on becoming a member, programs and services, the support network and resources.
   http://www.aboutfaceusa.org/

» CCDD: Craniofacial Development Information Resource
   Provides general and in-depth information about the embryonic, fetal and postnatal development of the skull with interactive images.
   http://www.hopkinsmedicine.org/craniofacial/LynmProject/

» Chase's Pierre Robin Story
   Personal story of a child born with this condition, told in words and pictures.
   http://www.skippercat.com/pierrerobin.com/

» Children's Hospital Boston: Craniofacial Anomalies
   Provides information on the diverse group of deformities that can affect the growth of the head and facial bones, their causes, types and treatment.
   http://www.childrenshospital.org/az/Site1407/mainpageS1407P0.html

» Children's Hospital Los Angeles: Hope for Kids
   Describes the work of the reconstructive team in the Division of Plastic Surgery. Includes information for patients and their families, and for healthcare professionals.
   http://www.hopeforkids.com/

» Children's Hospital of Wisconsin: Hemifacial Microsomia
   Provides information on this condition, the many different types, their causes, diagnosis and treatment.
   http://www.chw.org/display/PPF/DocID/21821/router.asp

» Craniofacial Foundation of America
   The CFA is a non-profit organization that supports the work of the Tennessee Craniofacial Center in Chattanooga, Tennessee. Includes news, some patient stories and information on volunteering, donating and events.
   http://craniofacialfoundation.org/

» Facial Deformities
   Provides information on microtia, hearing restoration, cleft lip and palate, facial palsy and hemifacial microsomia.
   http://littlebabyface.org/facial.html

» Little Baby Face Foundation
   Charitable organization that helps children from around the world with facial deformities, arranging for them to have reconstructive surgery.
   http://littlebabyface.org/

» Merck Manual: Craniofacial Abnormalities
   This online medical manual describes the common craniofacial syndromes including cleft palate and lip, small mandible deformities, agenesis of the jaw and congenital ear malformations.
   http://www.merck.com/mmpe/sec19/ch288/ch288d.html

» Patient UK: Pierre Robin Syndrome
   Article on this condition which is usually characterized by small or retracted mandibles, a cleft palate and large tongue. Includes epidemiology, presentation, diagnosis, management and prognosis.
   http://www.patient.co.uk/doctor/Pierre-Robin-Syndrome.htm

» Seattle Children's Hospital: Craniofacial (Hemifacial) Microsomia
   Provides information on this condition characterized by small or underdeveloped parts of the face. Includes an overview, symptoms, diagnosis and treatment options.
   http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/hemifacial-microsomia/

» The National Craniofacial Association: Saethre-Chotzen Syndrome
   Factsheet on this rare condition charaterized by the premature closure of one or more of the sutures between the bones of the skull.
   http://www.faces-cranio.org/Disord/Saethre.htm

» UNSW Embryology: Musculoskeletal System: Skull Development
   Provides a detailed description of the embryo stages in the development of the skull and the abnormalities that may occur in the process.
   http://embryology.med.unsw.edu.au/Notes/skmus8a.htm

» WHO: International Collaborative Research on Craniofacial Anomalies
   Project to establish an international network to encourage research into craniofacial anomalies including their genetic base, hereditary and environmental interactions, prevention and treatment.
   http://www.who.int/genomics/anomalies/cfaproject/en/

» Waardenburg Syndrome
   Original paper by P. J. Waardenburg describing the syndrome named after him, characterized by developmental anomalies of the eyelids, eyebrows and noseroot with pigmentary anomalies of the iris and head hair and congenital deafness.
   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1716407/?tool=pmcentrez

» Waardenburg's Syndrome
   Article describing many of the characteristics of this genetic disorder, part of course material at Brown University.
   http://www.brown.edu/Courses/BI0032/neurcrst/waar.htm

» Wikipedia: Saethre-Chotzen Syndrome
   Encyclopedia article on this rare congenital disorder characterised by premature closure of sutures between the bones of the skull and resulting in facial asymmetry, small ears and syndactyly of the fingers.
   http://en.wikipedia.org/wiki/Saethre-Chotzen_syndrome

» eMedicine: Waardenburg Syndrome
   Article on this genetic disorder characterized by varying degrees of deafness, minor defects in structures arising from the neural crest and pigmentation anomalies. Includes pathophysiology, frequency, clinical signs, causes, diagnosis and treatment.
   http://emedicine.medscape.com/article/950277-overview