Web Directory

» Boomer Esiason Foundation
   A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
   http://www.esiason.org

» Breathe for Britt Fondation
   Set up in memory of Brittany F. Braun who died in 2008. BFBF assists children and adults who suffer from cystic fibrosis by providing special gift packages containing appropriate items for the patient’s comfort and enjoyment.
   http://www.breatheforbritt.org

» Canadian Cystic Fibrosis Foundation
   Support and resources. Located in Toronto, Ontario.
   http://www.cysticfibrosis.ca/

» Chicago Cystic Fibrosis Awareness Day
   Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
   http://chicagocfawareness.org

» Child Health International
   CHI aims to improve healthcare for children, especially those with cystic fibrosis. Includes information on the organization and its projects, mainly in Eastern Europe.
   http://childhealthinternational.org

» Cochrane Cystic Fibrosis & Genetic Disorders Review Group
   An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
   http://www.liv.ac.uk/CFGD/

» Concerned Friends of Cystic Fibrosis in Israel
   Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
   http://www.cfcfisrael.org

» Cystic Fibrosis Australia
   Information about the organization and its aims and objectives, CF facts, events, links and contact details.
   http://www.cysticfibrosisaustralia.org.au/

» Cystic Fibrosis Foundation
   Seeking the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. Providing information about the disease, treatment options, clinical trials, research, and public policy.
   http://www.cff.org/

» Cystic Fibrosis Nurses: the International Specialist Group
   Organization whose goals include setting and promoting high standards of nursing practice in the treatment of persons with Cystic Fibrosis.
   http://www.cfnurses.net

» Cystic Fibrosis Services
   A subsidiary of the Cystic Fibrosis Foundation in the United States, and a national pharmacy that offers minimal-cost medications to individuals with the disease.
   http://www.cfservicespharmacy.com/

» Cystic Fibrosis Trust
   National charity in the United Kingdom which funds research into the disease and provides information and support for patients and families.
   http://www.cftrust.org.uk/

» Cystic Fibrosis Victoria Inc
   Information about Cystic Fibrosis and the organisation, online chat room and message board.
   http://www.cfv.org.au

» Cystic Fibrosis Worldwide
   Organization seeking to aid people born with cystic fibrosis around the globe. Includes information on the disorder, programs, publications, fundraising, member associations and the CFW Network.
   http://www.cfww.org/

» Elizabeth Nash Foundation
   Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
   http://elizabethnashfoundation.org

» European Cystic Fibrosis Society
   ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis
   http://www.ecfsoc.org/

» European Cystic Fibrosis Thematic Network
   Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
   http://www.cfnetwork.be/

» Lungs for Life Foundation
   Provides financial assistance to cystic fibrosis and lung transplant patients.
   http://lungsforlife.org/

» Michigan Pulmonary Disease Community, Inc.
   Provides information, support, and advocacy for children and adults with Cystic Fibrosis. Includes adult support group, hospital CARE packages for children, scholarships, newsletter, and list of Michigan CF centers.
   http://www.mpdci.org

» National Cystic Fibrosis Awareness Committee (NCFAC)
   Helps to advance the public awareness of the genetic disease. Mission statement, support groups, fundraising and message boards.
   http://ncfac.tripod.com/

» New Jersey State Organization of Cystic Fibrosis
   NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a questions and answers, news, services offered and coming events.
   http://www.njsocf.org

» Reaching Out Foundation
   Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
   http://www.reachingoutfoundation.org/

» The Adult Cystic Fibrosis Committee of Quebec
   Non-profit community organization whose primary mission is to improve quality of life for persons with cystic fibrosis in Quebec. Information about CF for persons who have the disease, as well as their families, spouses, and caregivers.
   http://www.acfcq.qc.ca

» The Genentech Endowment for Cystic Fibrosis
   An independent, non-profit endowment dedicated to expanding access to Pulmozyme® (dornase alpha) therapy to qualifying un-insured and under-insured CF patients. Find the eligibility and how to apply.
   http://www.genentechcfendowment.org

» Utah Valley Institute of Cystic Fibrosis
   Non-profit corporation dedicated to education, research, and dissemination of information to patients and their caregivers, medical professionals, and researchers. Offers introduction, research, contact information, and news releases.
   http://members.tripod.com/uvicf/