Web Directory

» American Society of Genetic Disorders
   Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
   http://www.ashg.org/genetics/ashg/ashgmenu.htm

» Australian MPS & Related Diseases Society
   Informs and support those affected, directly or indirectly by a mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
   http://www.mpssociety.org.au

» Canadian Gene Cure Foundation
   The CGCF supports excellence in core human genetics research and aims to raise funds to enable scientists to discover cures and treatments for genetic disorders. Find details about the programs and events, and contact information.
   http://www.genecure.ca

» Dana's Angels Research Trust
   Information from this charitable organization on Niemann-Pick Type C disease and how individuals can contribute funds for research for this fatal childhood disease.
   http://www.danasangels.org

» Genetic Interest Group
   Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
   http://www.gig.org.uk

» Hereditary Disease Foundation
   Information about this non profit organization, news, newsletters, recommended reading and contact details.
   http://www.hdfoundation.org

» Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
   Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general publi
   http://www.hht.org/

» ISMRD: The International Advocate for Glycoprotein Storage Diseases
   Nonprofit organization whose mission is to advocate for families and patients affected by one of the glycoprotein storage diseases. Includes information, newsletter, personal stories and support.
   http://www.tarynsworld.org/

» Lysosomal Diseases New Zealand
   Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
   http://www.ldnz.org.nz

» Telangiectasia Self Help Group
   Provides several factsheets and a newsletter.
   http://www.telangiectasia.co.uk