Web Directory

» American Heart Association - Marfan's Syndrome
   Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
   http://www.americanheart.org/presenter.jhtml?identifier=4672

» Canadian Marfan Association
   Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
   http://www.marfan.ca/

» GeneReviews: Marfan Syndrome
   Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
   http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=marfan

» International Federation of Marfan Syndrome Organizations
   A global information center providing links to Organizations around the world.
   http://www.marfanworld.org/

» Life and Issues of Marfan's Syndrome
   Personal site by which describes the pathology and gives a bit of advice.
   http://www.io.com/~cortese/marfan/

» Living With Marfans
   This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
   http://jrmarfan58.com

» MFS Type 1 Fibrillin Gene
   Major resources listed as well as genetic information.
   http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

» Marfan Support and Information
   Support group in New South Wales, Australia.
   http://www.marfan.net.au

» Marfan Syndrome
   Online chapter from The Merck Manual of Medical Information.
   http://www.merck.com/mmhe/sec23/ch279/ch279c.html

» Marfan Syndrome: Does Diet Play a Role
   Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
   http://www.ctds.info/marfan.html

» Marfans Research Foundation
   Irish charity with information on fund raising activities and the condition.
   http://www.marfansresearchfoundation.ie

» NHS Choices: Marfan Syndrome
   Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
   http://www.nhs.uk/conditions/Marfan-syndrome/

» National Marfan Foundation
   Providing accurate and timely information about the disorder to patients, family members and physicians.
   http://www.marfan.org/

» Questions and Answers about Marfan Syndrome
   From the National Institutes of Health.
   http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp

» Slovak Marfan Association
   The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
   http://marfan.szm.sk

» South African Marfan Syndrome Organisation
   Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
   http://www.marfan.org.za

» The Marfan Syndrome
   A diary of the disease events in the life of someone with this condition. Includes a list of links.
   http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

» The Mystery of Akhenaten: Genetics or Aesthetics?
   A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
   http://www.heptune.com/Marfans.html

» Univ. of Washington - Marfan Syndrome
   What the disease is and includes the impacts on daily life.
   http://www.orthop.washington.edu/arthritis/types/marfan/01