Web Directory

» Cranio Kids
   Group started by a mother and father looking for information on craniosynostosis. Offers fun, friends and craniosynostosis support. Includes a forum and blog.
   http://www.craniokids.org/

» Cranio Surgery Support
   Offers information, help, and support for parents of children with craniosynostosis. Includes a photo diary of the events following Sydney's surgery in 2003.
   http://www.stlhorton.com/

» Craniosynostosis and Plagiocephaly Support
   Site set up by two Manitoba women whose children were diagnosed and treated for craniosynostosis. Includes information on the conditions, therapies, FAQ, surgery stories and offers somebody to talk to.
   http://www.cranioplagiosupport.com/

» Jorge Posada Foundation: Craniosynostosis
   The foundation aims to raise awareness of this congenital defect and provides families and affected children with emotional support and financial assistance.
   http://www.jorgeposadafoundation.org/craniosynostosis/

» Parents of Children with Craniosynostosis (PCC)
   Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah.
   http://pcc2000.org.tripod.com/

» The Craniofacial Group - Paris, France
   Craniofacial Group; Management of anomalies of skull and face : craniosynostosis, facial clefts, hypertelorism, tumors and trauma.
   http://www.cranio-facial.org/