Web Directory

» AboutFace
   International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
   http://www.aboutfaceinternational.org/

» Acne Support Group in Cyberspace
   Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.
   http://asgic.proboards.com/

» Beneath the Surface
   Offers support and understanding to individuals with facial differences. Includes the founder's story and encourages others to share their experiences.
   http://pvdw.tripod.com/~beneath_the_surface0/

» Birthmark Support Group
   UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.
   http://www.birthmarksupportgroup.org.uk/

» Changing Faces
   UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.
   http://www.changingfaces.org.uk/

» Children's Craniofacial Association
   Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
   http://www.ccakids.com

» Crouzon Support Network
   Provides information and support for people affected by Crouzon Syndrome and related craniofacial anomalies. Includes FAQ, newsletter, events and online support.
   http://www.crouzon.org

» FACES: The National Craniofacial Association
   Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
   http://www.faces-cranio.org

» Foundation for Faces of Children
   Expert information for families and health care professionals about craniofacial conditions.
   http://www.facesofchildren.org

» Goldenhar Family Support Group
   Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.
   http://www.goldenhar.org.uk/

» Headlines
   Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
   http://www.headlines.org.uk/

» Johns Hopkins Center for Craniofacial Development and Disorders
   Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
   http://www.hopkinsmedicine.org/craniofacial/

» Let's Face It USA
   A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
   http://www.php.com/lets-face-it-usa

» Moebius Syndrome Foundation
   Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.
   http://www.moebiussyndrome.com/

» Sincere Meditations
   Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
   http://www.davidroche.com/lamott.htm

» Support Works Online
   Resources to find or form support groups related to facial difference. Information on medical research.
   http://www.supportworks.org/cat806.htm

» TRPS Support Group UK
   Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.
   http://trpsuk.org/

» The AmeriFace Circle of Smiles
   Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.
   http://www.webring.com/t/The-AmeriFace-Circle-of-Smiles

» The Craniofacial Society of Great Britain and Ireland
   Information about the society, which is a multidisciplinary forum for specialists.
   http://www.craniofacialsociety.org.uk/

» The DRM WebWatcher: Facial Differences
   A Disability Resources monthly guide to online resources about craniofacial differences.
   http://www.disabilityresources.org/FACE.html

» The Facial Pain Association
   Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.
   http://www.fpa-support.org/

» The Personal Side of Craniofacial Differences
   Personal accounts of living with craniofacial conditions, and related webrings.
   http://members.tripod.com/~Craniofacial/index.html

» University of Michigan: Let's Face It
   Provides information and resources for those with facial differences, those who care for them and the general public. Includes a list of conditions and information on treatment and lifestyle.
   http://desica.dent.umich.edu/faceit/

» XP Support Group
   UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
   http://xpsupportgroup.org.uk

» Yayasan Senyum: The Smile Foundation
   Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.
   http://www.senyumbali.org