Web Directory

» Mihai Tudose
   Find the story of a 4 year old boy with an uncertain diagnosis for his neuro muscular disease. It contains most of his medical files and his parents hope that the website will help them find some new treatments or news in order to improve the child' s con
   http://mihai-tudose.netopia.ro

» NINDS: Myotonia Congenita
   Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/disorders/myotoniacongenita/myotoniacongenita.htm

» National Institute of Neurological Disorders and Stroke
   Also called kinsbourne syndrome, myoclonic encephalopathy of Infants, or dancing eyes-dancing feet syndrome, an information sheet compiled by NINDS.
   http://www.ninds.nih.gov/disorders/opsoclonus_myoclonus/opsoclonus_myoclonus.htm

» TREAT-NMD
   The TREAT-NMD Network of Excellence is a major European-wide initiative bringing together leading researchers and clinicians to improve treatment and find cures for thousands of patients with neuromuscular disorders. Find standards of care, a newsletter,
   http://www.treat-nmd.eu/

» The Institute for Neuromuscular Research
   The aim of the Institute for Neuromuscular research is the make the lives of children better through advances in muscle and nerve research.
   http://www.inmr.com.au

» Weldon FOP Research Fund
   Raises awareness and funding for the University of Pennsylvania and Dr. Fred Kaplan, the world's authority on Fibrodysplasia Ossificans Progressiva. Find info about the fund, news and events and support the fund.
   http://www.weldonfop.org

» Who has a Disability?
   Post-Polio Syndrome, CFS, progressive long term disabilities, helpful hints and links, information on SS Guidelines, equipment options, accessibility solutions, handicap lifestyle changes, family awareness and support.
   http://www.fortunecity.com/meltingpot/grove/1105

» eMedicine Health - Electromyography (EMG)
   Consumer health resource center providing information on the uses, benefits, and risks associated with EMG which involves testing the electrical activity of muscles.
   http://www.emedicinehealth.com/articles/6590-1.asp