Web Directory

» A Guide for Parents
   This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
   http://www.mda.org.au/Information/Publications/Guide/mdaguide.asp

» Becker Muscular Dystrophy Information Exchange
   Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
   http://www.beckermusculardystrophy.org

» DMD Information
   Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
   http://www.angelfire.com/band/teja/index_dmd.html

» DMD Pioneers
   Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
   http://www.dmdpioneers.org/

» Duchenne/Becker Muscular Dystrophy
   Includes key facts and animated slide shows of causes, diagnosis and treatment.
   http://www.ygyh.org/dmd/

» General Practice Notebook: Duchenne Muscular Dystrophy
   Clinically-oriented information.
   http://www.gpnotebook.co.uk/simplepage.cfm?ID=-885719035

» Living For Today, Preparing For Tomorrow
   Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
   http://www.livingfortoday.org

» MDA Ride For Life
   Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
   http://www.mdarideforlife.org/

» Muscular Dystrophy
   Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
   http://www.musculardystrophy.gr/

» Muscular Dystrophy Campaign
   Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
   http://www.see-search.com/musculardystrophycampaign.htm

» NHS Choices: Muscular Dystrophy
   Provides a short video on living with this condition and details of symptoms, causes, diagnosis, treatment and prevention.
   http://www.nhs.uk/conditions/Muscular-dystrophy/

» NINDS Muscular Dystrophy Information Page
   Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
   http://www.ninds.nih.gov/disorders/md/md.htm

» National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
   Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
   http://www.urmc.rochester.edu/nihregistry/

» Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy
   Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.
   http://www.chestjournal.org/cgi/reprint/112/4/1024.pdf